Communique'

MONTGOMERY COUNTY STROKE ASSOCIATION, Inc.

      A NON-PROFIT (501-C-3) ORGANIZATION HELPING STROKE SURVIVORS & CAREGIVERS SINCE 1981

MCSA Communique'  October 2024

You are not alone!


P.O. Box 9343 Amy Boltz, President

Silver Spring, MD  20916-9343 Janet M. Gritz, Editor

(301) 681-6272 

email:  MCStrokeInfo@gmail.com

We hope you like MCSA’s monthly COMMUNIQUE’  newsletter.


REMINDER: The monthly Communique’ is now being distributed digitally via email.

Only people who request “home delivery” will receive postal-delivered newsletters. To request home delivery, leave a phone message at 301-681-6272 or send an email to mcstroke@comcast.net .  Please include your full name, your email address, and your home mailing address.

 

VIRTUAL VS. IN-PERSON MEETINGS


MCSA hopes to resume in-person meetings this year.  Chapter meetings were cancelled during the pandemic.  Now we need chapter chairpersons and helpers in order to again offer any or all of our previous 3 monthly chapter meetings.  Without chapter leaders, MCSA might offer only one in-person meeting site or might provide only virtual meetings. Contact MCSA at 301-681-6272 if you can be of help.  We invite you to let us know if you have suggestions for program topics or speakers.


Until in-person meetings resume, MCSA will offer virtual (online) programs.  Notices about upcoming meetings will be listed in our newsletter, posted on MCSA’s website (www.mcstroke.org), and emailed  to MCSA members who have provided their email addresses. To stay informed, please send your name and current email address to mcstroke@comcast.net and check events listings on our website (www.mcstroke.org


MCSA INVITES YOU TO ATTEND  OUR  FREE OCTOBER 2024 PROGRAMS:


CHAIR YOGA WITH REGINE:  Wednesday, October 23, 11 a.m. – 12 noon  Eastern Time.

Join us for deep breathing and gentle stretching that can be done when sitting in a chair. Virtual classes via Zoom.  Free.  Invitations will be emailed at appropriate times. 

 

 

MCSA’s STROKE SUPPORT GROUP:  3rd Thursday, October 17,  3:00-4:00 p.m. Eastern Time.

This is MCSA’s monthly virtual support group for stroke survivors and family caregivers. Ask questions, discuss stroke experiences, offer support to each other, and share helpful suggestions and resources.  Free. Meeting invitations and reminders will be emailed. 

 

MCSA’s Board of Directors meets via Zoom on the 2nd Thursday, October 10, from 10 a.m. to 12 noon Eastern Time.  If you would like to join the Board, let MCSA know (mcstroke@comcast.net).

 

OCTOBER 29 is WORLD STROKE DAY

Be a “stroke ambassador” by spreading the word about stroke. Let you friends, relatives, neighbors, and co-workers know the risk factors for stroke, ways to reduce that risk, warning signs of a stroke, and the urgent need to call 9-1-1 to report a stroke.  See page 9 for Stroke Awareness information. 


* * * MCSA HIGHLIGHTS * * *



LOCAL STROKE RESEARCH

 

The Aphasia Research Center at the University of Maryland has numerous studies that focus on improving diagnosis and therapy for persons with aphasia and on better understanding language difficulties in persons with aphasia. Some studies are conducted online (via Zoom). One study involves brain imaging done at the University of Maryland. Another study focuses on Spanish-English bilingual speakers with and without aphasia. One study involves persons with aphasia as well as adults over 45 years who do not have aphasia.  Participants will be paid $20/hour.  To find out about a  study  that involves online interviews of persons who have aphasia affecting their grammar skills, email maomao@umd.edu. For more details about U. of Md. aphasia research, call 301-405-2477, visit www.aphasia.umd.edu or www.bilingual.umd.edu, or email  aphasia@umd.edu .

 

The University of Maryland is also conducting a study entitled, “Arm Rehabilitation Post Stroke Using Rehabilitation Robot.”  The purpose of this study is to determine the efficacy of hybrid robotic arm training on recovery of arm function in individuals with chronic stroke.  Qualified participants will participate in 18 training sessions focusing on arm-reaching movements. These training sessions will take place over 6 weeks, at a rate of about 3 sessions per week.  Participants will be paid for attending their training sessions. Contact Sanjana Rao at 443-825-6349 for details.

   

The Cognitive Recovery Lab (CRL) run by Dr. Peter Turkeltaub at Georgetown University and the Fama Aphasia Recovery (FAR) Lab at George Washington University (both in Washington, D.C.) offer research studies or treatment programs for stroke survivors who have aphasia.  These two facilities recently published a new Aphasia DMV Resource Guide.  For more information, please visit www.cognitiverecoverylab.com or call 202-877-1124,  or visit www.famaaphasiarecoverylab.org .

 

Repetitive Action Simulation Program (R.A.S.P.) Needs Participants: This is a 6-week action simulation upper limb circuit training group. Participants must have a stroke diagnosis with weakness of one upper limb  and be at least 18 years old. Takes place in Towson, Md.  Free lunches, gift cards. For details, contact Dr. Teresa Green at 410-704-4304  or Teresagreen@towson.com 


DONATIONS TO MCSA

 

Donations to MCSA are welcomed at any time during the year.  Funds received will help MCSA provide a variety of free programs and services to stroke survivors and their family caregivers. MCSA is a 501-c-3 non-profit charitable organization. To donate to MCSA, send your check (made payable to MCSA or Montgomery County Stroke Association, Inc.) to: MCSA, P.O, Box 9343, Silver Spring, MD 20916-9343.  We appreciate donations of any size.



COMMUNITY EVENTS OF INTEREST

 

Beacon 50+ Expos this fall:   (For details visit beacon50expo.com or call 301-949-9766.)

-       Silver Spring (Md.) Civic Building -  Sunday, October 20, noon to 4 p.m.

-       Springfield (Va.) Town Center -  Sunday, November 3, noon to 4 p.m.

These events feature health provider exhibitors/vendors, free health screenings, and much more.

 

Stroke Comeback Center’s  5th Annual Stroke Comeback Trail -  October 24-27, 2024:

Pick a time between October 24 and 27  to complete your own route.  You can walk, run, or roll.   For registration and other information, visit www.runsignup.com  or info@strokecomebackcenter.org 


 

Local (in or near Maryland) In-Person Stroke or Aphasia Support Groups

 

 * Aphasia Community Group in Frederick, Md. (Brain & Balance Center):  Wednesdays, 1:00 to 2:00 p.m. (Eastern Time). Call 301-662-1997 or email Sandi.Lancaster@bakerrehabgroup.com .

 

* Renew Speech Language Pathology fall group programs:  In-person 12-week group classes (for a fee) in Columbia, Md. and some free online stroke support sessions for people who have aphasia or Parkinson’s Disease.  Large variety of classes.  Email julie@neurorehabnetwork.org.

 

* SCALE (Snyder Center for Aphasia Life Enhancement).   Baltimore, Md. area.  SCALE is now sponsored by the League for People with Disabilities. Visit https://leagueforpeople.org for details.

 

* Stroke Comeback Center: In-person (Vienna, Va. and Rockville, Md.) and online classes. For details, call 703-255-5221 or visit www.strokecomebackcenter.org.

 

Stroke Support Group (in person)  at the Adventist Healthcare White Oak Medical Center:

This in-person support group meets monthly on 4th Wednesdays at 4 p.m. Eastern Time in Silver Spring, Md.   For details, email  Asaad@adventisthealthcare.com.

 

Young Aphasia Conversation Club (Y.A.C.C.):  Meets monthly on 2nd Mondays, 4-5:30 p.m. E.T. in Annapolis, Md. and via Zoom. Contact Judy Crane ( jbcrane77@gmail.com  or 301-520-9044).

 


Helpful Online Stroke or Aphasia Resources

 

Aphasia Recovery Connection (ARC) and  Lingraphica/Virtual Connections:  

- ARC has helpful information and programs for stroke survivors and others who have aphasia.  Visit (www.aphasiarecoveryconnection.org).  

- Lingraphica (www.aphasia.com) provides wonderful free online fun classes for ARC through a program called  "Virtual Connections."   For details,  visit  https://www.aphasia.com/join-vc .

 

Healing Strokes Art Therapy:  www.Stanfordhealthcare.org.  Online. Saturdays, 1-2pm Pacific Time (4-5pm Eastern Time). Free (including art supplies mailed to you). Register first. Call 650-736-2234 or email wellnessclasses@stanfordhealthcare.org .

 

Janet Gritz’s free Stroke/Aphasia Chats via Zoom:  2nd and 4th Fridays, 2-4 p.m. Eastern Time.

For details, contact Janet (301-622-2282 or JanetGSLP@comcast.net).  Next dates: 10/11 & 10/25.

 

Montgomery County Stroke Association’s  monthly virtual Stroke Support Group:  Meets on 3rd Thursdays, 3-4 p.m. Eastern Time via Zoom. Free. For details, email mcstroke@comcast.net .

 

National Aphasia Association (NAA):  (www.aphasia.org)

Visit the NAA website and subscribe to NAA's free newsletter for information and free programs for people who have aphasia, for their caregivers, and for health care professionals.  

 

National Stroke Association (NSA): (naa@aphasia.org, https://www.aphasia.org):  Free online information, newsletter, resources, and programs including Aphasia Café and Ask the Expert.

 

Sibley Hospital Stroke Support Group:  Meets via Zoom on 1ST Wednesdays at 1:00 PM Eastern Time.  For details, email Amy Chew at achew6@jh.edu.

 

Stroke Buddies: By and For Stroke Survivors.  www.strokebuddies.orgFacebook group, newsletter, Stroke Buddies YouTube videos.



UPCOMING COMMUNITY EVENTS

 

Join Montgomery County Stroke Association’s

    CHAIR  YOGA with Regine

  (Free Virtual Online Classes via Zoom)

4th Wednesdays:  October 23

11 a.m. to 12 noon Eastern Time


Seated Yoga Class for Beginners with Regine Clermont

Modified for Stroke Survivors & Seniors  

(Movements can be done while seated in a chair.) 

Montgomery County Stroke Association (MCSA) presents

 

 

Montgomery County Stroke Association’s

STROKE SUPPORT GROUP

Meets online on 3rd Thursdays at 3:00 p.m. Eastern Time

 

October 17, 2024

 

 

Save the date and Zoom with us if you can.

 

FREE!

 

 

Email mcstroke@comcast.net if this virtual stroke support group interests you. 

Zoom invitations (and meeting reminders) will be emailed to you at appropriate times.

 

 

Register in advance for this meeting:   (Click on the link below to pre-register.)

https://us02web.zoom.us/meeting/register/tZcvdu-vqzkoGt1VCzo-e-iyqWvWxdaki3hN

After registering, you will get a confirmation email from Zoom with information about joining the meeting. Save that email and use the Join Meeting link at 3pm on September 19. 

Montgomery County Stroke Association (MCSA)

Sailed with Chesapeake Region Accessible Boating (CRAB)

 

On May 2nd and September 5th

in Annapolis, Maryland

Here are two photos from our May 2, 2024 sail with CRAB. Here is a group photo from our September 5, 2024 sail with CRAB.  

ONLINE RESOURCES FOR STROKE SURVIVORS   (MCSA, October 2024)

 

-       Adler Aphasia Center: Virtual Meet-Ups. https://signupgenius.com/go/904044ba5ad23abf49-free1. Weekly meetings via Zoom on Wednesday evening or Thursday afternoon.  Ask about fees.

 

- Adventist Rehab Hospital sponsors brain injury (including stroke), aphasia, and dysphagia support groups.  Some are virtual and some are in person. For details, email Anna Zolkowski at bisupportgroup@adventisthealthcare.com, Anarose Hogan at ahogan@adventisthealthcare.com for the aphasia group,  Amelie Bail at abail@adventisthealthcare.com for the Spanish BI group, or Megan Hayn at dysphagia@adventisthealth.com for the dysphagia (swallowing disorder) group. For the White Oak Medical Center stroke support group (4th Weds. at 4pm), email  Asaad@adventisthealthcare.com .

 

Aphasia Community Group in Frederick, Md. (Brain & Balance Center):  Wednesdays from 1:00 to 2:00 p.m. (Eastern Time). Call 301-662-1997 or email Sandi.Lancaster@bakerrehabgroup.com .

 

- Aphasia Recovery Connection (ARC):  Website (www.aphasiarecoveryconnection.org).

 Facebook group. Free programs include Virtual Connections (https://www.aphasia.com/join-vc).  

 

- Aphasia Software Finder:  https://www.aphasiasoftwarefinder.org.  Free. Hundreds of reviews.  

 

- Bungalow Software: www.bungalowsoftware.com. Computer software and online programs for persons with aphasia.  Free Aphasia Workbook.  Monthly software highlights and free offers.

 

-  Cleveland Hearing & Speech Center:   Email rmental@chsc.org. Adult Communication Group meets every Wednesday via Zoom from 1:00 to 2:00 p.m. Eastern Time.  Free.

 

-  Constant Therapy:   Speech/language and cognitive therapy software and apps. 14-day free trials.   For more information, email support@constanttherapy.com or visit www.constanttherapy.com.

 

- ETSU Communication Support Group:   Email andrewscm@etsu.edu. Free. Monthly on 3rd Wednesdays, 3:30 to 5:30 p.m. via Zoom.  Contact person:  Courtney Andrews, MA, CCC-SLP.

 

-   Flint Rehab:  www.flintrehab.com.  Devices for stroke recovery; free newsletter; helpful articles.

 

Joan L. Green, Speech-Language Pathologist, Technology Specialist:  Learn how technology can help you. Free 15-minute phone consults. Informative website. Contact Joan at 301-602-2899,1-800-IST-2550, joan@innovativespeech.com, or visit www.innovativespeech.com.

 

Janet M. Gritz, MA, CCC-SLP:  Free Zoom Stroke / Aphasia Chats (support groups) for stroke survivors and caregivers on  2nd & 4th Fridays, 2:00 to 4:00 p.m. (ET). Next dates: Oct. 11 and 25 .  For details or to register, leave a message for Janet at 301-622-2282 or email janetgslp@comcast.net

 

- International Aphasia Movement:  https://iamaphasia.org.  Small group aphasia therapy on Zoom in English, Spanish, Mandarin, and Cantonese.  Two Monday evenings per month.  Free.

 

- League for People with Disabilities: https://leagueforpeople.org. (Includes SCALE aphasia programs.)

 

- Lingraphica:   Sells dedicated communication devices for people with speech and language impairment, has 2 free online speech therapy programs (TalkPathNews & TalkPathTherapy), provides free Virtual Connections. Contact Lingraphica at 1-888-965-6005 or http://www.aphasia.com.

 

 - National Aphasia Association:  (naa@aphasia.org, https://www.aphasia.org):  Free information, newsletter, resources, programs. Check listing for their Aphasia Café and other free online programs. 

 

- Parrot Software:  Memory, language, and cognitive programs for stroke survivors. Monthly subscription, free offers. Email parrotsoftware@gmail.com or visit www.parrotsoftware.com.


- Requests & Dedications:  Free online guitar playing and singing by stroke survivor Frank Goulart. Tuesdays (3:30-4:30 pm ET) & Thursdays (5-7 pm ET).  Email fgoulart@pacbell.net for program links.

 

- SCALE (Snyder Center for Aphasia Life Enhancement):  Visit https://leagueforpeople.org .

 

- Sibley Hospital Stroke Support Group:  Meets via Zoom on Wednesdays at 1:00 PM E.T.  For details, contact Jenni Knittig at 202-660-7413.

 

 - Saebo Rehab:   www.saebo.com. Helpful newsletter, devices, and articles about stroke recovery.

 

Sing Aphasia:  https://singaphasia.com. Weekly choir rehearsals on Zoom.  First class is free, then pay-what-you-can donations are requested.  Saturdays, 11 a.m. Eastern Time.

 

- Stroke & Aphasia Recovery (STAR) Program, Texas Tech University Health Sciences Center.

https://www.ttuhsc.edu/health-professions/star-program/   Free. Tuesdays and Thursdays (Zoom).

 

- Stroke Comeback Center: info@strokecomebackcenter.org, www.strokecomebackcenter.org

Virtual and in-person classes in Vienna, Va., and Rockville, Md.  Facebook page. 703-255-5221.

 

- United Stroke Alliance Community: Talk-About-It-Tuesday. https://unitedstrokealliance.org .

 

- Virtual Connections:  Free programs. https://www.devices.aphasia.com/virtual-connections

 

- Voices of Hope for Aphasia:  Email  info@vohaphasia.org for event details and the newsletter.

 

- Young Aphasia Communication Club (YACC):  Virtual meetings via Zoom or in person (2nd Mondays, 4-5pm E.T.)  Contact Judy Crane at  jbcrane77@gmail.com for details.

 

- YMCA of Metropolitan Washington Stroke Re-Integration Program:  Free 8-week program for older adults (65+) who had a stroke and for their caregivers.  Also Fit & Well Seniors online exercise programs. For details, check their website (www.ymcadc.org) or call 202-232-6700.


OTHER ONLINE RESOURCES (NOT SPECIFICALLY STROKE-RELATED)

AARP:  https://www.aarp.org/home-family/personal-technology/:

 

Exercise and fitness classes online:

- Adventist Rehab Hospital:  Exercise, yoga, cooking classes. Call 240-864-6000 for details.

- Bone Builders:  Age 55+, Montgomery County Public Library. Call for current dates and times. Visit www.montgomerycountymd.gov and look for library / exercise classes.

-  Holy Cross Hospital virtual fitness classes: Visit https://www.holycrosshealth.org for details.

-  Silver Sneakers:  Fitness programs for age 65 +.  Visit https://www.tools.silversneakers.com .

- Spirit Club:  Fitness for all. Pay-what-you-can option. Daily virtual exercise, meditation, healthy cooking, and other classes. Contact Jared at 301-933-3722 or visit www.spirit-club.com.

 

-  YouTube:  Search for exercise videos by Physical Therapists “Bob and Brad.”

 

Library Services:   Many online services are offered by the public library system in Montgomery County, Md. and Washington, D.C. Call Ask-a-Librarian at 230-777-0001 for details, or visit  https://www.montgomerycountymd.gov/library  or  www.dclibrary.org/goDigital .

 

SeniorPlanet.org:  Many interesting lectures, technology classes, exercise classes. To check out a program that helps seniors use technology, visit www.Seniorplanet.org/aging-connected .

 

StrongerMemory:  Free program at www.goodwinhouse.org/stronger-memory.


Virtual Music Therapy from Kensington Park: Online (live sessions via Zoom) every other Thursday morning, 11–11:30 AM. Eastern Time.  Free.  RSVP to Conor (301-946-7700).


STROKE IS A BRAIN ATTACK!

DON’T DELAY.   CALL 9-1-1 RIGHT AWAY.

KNOW THE TYPES OF STROKES

 

1.  Blood Clots in or leading to the brain:  These are “ischemic” strokes. The 2 main types are:

Cerebral Thrombosis:  An artery bringing blood to the brain is blocked by a blood clot (thrombus) that forms inside the artery, or a clot forms in a vessel in the brain.

Cerebral Embolism:  A wandering clot (embolus) being carried by the bloodstream gets lodged in an artery in the brain. This cuts off the blood flow that brings oxygen to the brain.

 

2.  Bleeding in the brain:  These are called “hemorrhagic” strokes.

A diseased or defective artery in the brain bursts and floods the surrounding tissue with blood (cerebral hemorrhage), or a blood vessel on the surface of the brain ruptures and bleeds into the space between the brain and the skull.  The resulting loss of blood supply and pressure from accumulated blood interfere with brain cell function. A cerebral hemorrhage feels like the worst headache of your life. Surgery can remove the clot and reduce pressure on the brain.

 

KNOW THE RISK FACTORS YOU CAN CHANGE  (80+% of strokes could be prevented.)


1. High blood pressure

2.    Heart disease (including atrial fibrillation)

3.   High red blood cell count

4.   Transient Ischemic Attacks (TIA’s)

5.   Elevated blood cholesterol and lipids

 

6.   Cigarette smoking

7.   Excessive alcohol intake

8.   Physical inactivity

9.   Obesity

 


KNOW THE WARNING SIGNS (SYMPTOMS) OF STROKE  –  CALL 9-1-1


1.  Sudden weakness or odd feelings in the face, arm or leg on one side of the body;

2.  Sudden and unexplained confusion, or difficulty speaking or understanding;

3.  Sudden trouble seeing in one or both eyes;

4.  Sudden trouble walking; dizziness; loss of balance; or loss of coordination;

5.  Sudden severe headache (the worst headache of your life) with no known cause.

 


Here’s a way to remember stroke signs:   Think “BE  FAST” to help identify a stroke.


B = BALANCE.  Sudden onset of dizziness or balance difficulties may be a sign of a stroke.

E = EYES.   Sudden loss of vision in one or both eyes could be a sign of a stroke.

F = FACE.  Smile.  Is one side of the face droopy?  (The droopy side is weaker.)

A = ARMS.   Raise both arms. Is one arm lower?   (The lower side is weaker.)

S = SPEECH.  Say a sentence. Is speech slurred or are the words wrong or strange?

T = TIME.  Time to call 9-1-1 and report a strokeNote the time when symptoms began.

 


IF YOU THINK THAT SOMEONE IS HAVING A STROKE,

CALL 9-1-1 IMMEDIATELY!

Some treatments are only effective if they start within 4 hours of the onset of a stroke.

Fast treatment saves lives and reduces disabilityDon’t delayCall 9-1-1 right away.

Time lost is brain lost.   Two million brain cells die each minute during a stroke.

Every 30 minutes of delay could reduce good outcomes by 10%.


HEART HEALTH INFORMATION (CDC figures)

Incidence and morbidity figures:

·         Heart disease is the leading cause of death for men and women in the U.S.

·         Someone in the U.S. has a heart attack about every 40 seconds.

·         That’s about 805,000 people in the U.S. who have a heart attack every year.

·         One person in the U.S. dies from cardiovascular disease every 33 seconds.

·         About 695,000 people in the U.S. died from heart disease in 2021.

·         One in 5 deaths in the U.S. is from heart disease.

·         About 1 in 20 adults (age 20+) have Coronary Artery Disease (CAD).

Risk factors for heart disease include:

High blood pressure, high blood cholesterol, smoking, diabetes, obesity,

unhealthy diets, physical inactivity, and excessive alcohol use.

 

Warning signs of a heart attack (CALL 9-1-1)

·         Chest pain or discomfort; shortness of breath;

·         pain or discomfort in the neck, back, arm, or shoulder;

·         feeling nauseous, light-headed, or unusually tired.


Montgomery County Stroke Association

Visit MCSA’s Website:   www.mcstroke.org

 Email address:  mcstroke@comcast.net

Non-emergency Helpline:  301-681-6272

© 2024, Montgomery County Stroke Association, Inc